The Ministry of Health ensures that it will drop the possibility of the personal data of patients enrolled in the Register National Oncological (RON) can be used for other purposes and, as suggested pla Data Protection Commission, a single entity shall be appointed for the administration and management of all information.
in response to questions sent by TSF, the minister’s office Adalberto Campos Fernandes states that decided to “fine tune some rules” of the document.
in the first version of the RON, it was up to patients to present a written statement to disallow the use of the data provided for other purposes, a reference to the new text drops.
in analyzing the proposed rules for the Registration, the National Commission data Protection warned of the risk of privacy exposure of patients taking into account the inclusion of personal data, including information “special economic value” that could not “be at the mercy of anyone who go to list. “
League Against Cancer demands attention
in response to the Government’s decision, the president of the Portuguese League Against Cancer warns that the executive” will have to consider very well the data to be included in the register “national.
Vítor Veloso believes that the centralization of the three regional registries existing in a single national registry can cause problems because” the greater is the easiest structure is information leakage. “
President of the League Against cancer supports the creation of RON but hopes that the measure” is not a double-edged weapon “and recalls that the oncologic patient” has rights are usually run over and unknown by different entities, from hospitals to health centers. “
the new version of the National Oncological Registry will be examined by the Council of Ministers on 15 September. A meeting devoted to health. Once approved at the ministerial meeting, the proposed law goes to the Parliament.
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